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Posts tagged ‘voices for alaska’s children’

Too expensive to stay alive?

When Amber Lee was diagnosed last fall with a very rare genetic condition that can lead to aggressive kidney cancer, one of her first thoughts was if she would have insurance coverage to help cover the cost of care.

“It’s not a cheap disease to have. Without insurance, it would be impossible to manage,” says Amber, who must get MRIs of her kidneys regularly to monitor for cancerous growths that could quickly spread if not caught early. Currently, the Affordable Care Act (ACA) ensures that Amber can’t be denied health insurance coverage because of pre-existing conditions like this.

Amber is one of many Alaskans who would be profoundly impacted by the repeal of the ACA. She’s also one of many Alaskans speaking up to protect the ACA through Protect Our Care Alaska, a coalition of individuals, organizations and businesses.

“People and groups came together to protect the Affordable Care Act from repeal. It is still being threatened constantly,” Amber says. “The issue impacts everyone, and we are aligned with how important it is to get Congress to do the right thing.”

Voices for Alaska’s Children, a program of Alaska Children’s Trust, has been the backbone organization for the coalition, providing space and support for the grassroots effort.

“Health care is a critical tool to help prevent child abuse and neglect,” explains Trevor Storrs, ACT’s executive director. “Health care reduces stress on our most vulnerable families who are already struggling due to poverty, and inability to access services. Health care gives parents access to services to address their own trauma, provides preventive services, ensures children remain healthy physically and mentally, and minimizes the fiscal stress and impact on the family.”

For Amber, the importance of protecting the ACA goes beyond just her own health.

“The disease I have is genetic, so my kids could have it,” says Amber, who has two sons, ages 9 and 11. “If they are tested for the genetic condition and have it, they could be denied coverage for the rest of their lives.”

“There is already so much stress with the disease, and then on top of it, I have to worry about if I have insurance coverage and if I can pay for it. I make a decent salary, but it could get to a point where I can’t pay to care for myself. And for my kids, they could go through their entire lives without coverage. It is very stressful,” Amber shares.

“It gets to a point where you have to ask yourself, ‘Is it too expensive to keep myself alive?’”

“People talk about this like it is a political issue. But it’s about people’s lives,” Amber stresses. “Repealing the ACA means less coverage, less protection and more expense. It’s important for people to understand it.”

Amber strongly encourages other Alaskans to get involved in efforts to protect the ACA. “All these voices together send a strong message. We are not one special interest group. We are the majority of Alaska,” she says “Our voices are powerful.”

Get involved! Join ACT and others to #ProtectOurCare. Learn about the issue and how you can get involved at protectourcareak.org or on Facebook @protectourcareAK.

Take Action for Alaska’s Kids

Voices for Alaska’s Children Action Center

Voices FB profileA few weeks ago we announced the website for Voices for Alaska’s Children, a new grassroots, community movement that makes it easy for you to speak up on issues important to children and families in your community.

We hope you’ve had a chance to check out the new site. We especially want to be sure you’ve explored the Voices action center, where you can:

  • Find – and contact – your elected officials. Sometimes the hardest thing about speaking up is knowing who to speak to! The Voices action center makes it easy to get the ear of the right decision makers. You can not only find your local, state and federal representatives, but you can also contact them right from the website!
  • Get the inside scoop on proposed legislation, track existing bills and read up on the latest news related to children and families in Alaska.
  • Make your voice count by following tried-and-true advocacy tips and guidelines.

The Voices website is also the access point for KIDS COUNT, the premier source for data on child and family wellbeing both in Alaska and nationwide. Through our KIDS COUNT data center, you can:

  • Access data from the most trusted sources, find the most relevant statistics and compare your community with others.
  • Use intuitive visual tools to easily create customizable maps, graphs and tables.
  • Connect with data experts at the Annie E. Casey Foundation and throughout the KIDS COUNT grantee network.
  • Expand your reach through social media.
  • Encourage policies that support smart decisions about children and families.

Ready to raise your voice? Visit the Voices action center now and subscribe to our email list so we can keep you updated on news and ways you can get involved.

Want to support the work of Voices? Please consider making a donation to support our efforts.

Because even the littlest voices deserve to be heard.

 

Even the littlest voices deserve to be heard

Voices for Alaska’s Children makes it easy to speak up for Alaska’s kids

Voices FB profileWant to speak up on how potential new revenue sources impact Alaska families?

Have an opinion on how affordable health care is important to Alaska’s kids?

Have ideas about how to improve public education for our children?

There are so many issues and so many needs in our state, it can seem overwhelming. Hopeless. Helpless.

But it’s not. You have a voice. You can speak up. You can make a difference. We can help.

Voices for Alaska’s Children is a brand new grassroots, community movement supported by Alaska Children’s Trust and other community partners that makes it easy for you to turn up the volume on the issues you care about – whether that’s the PFD, health care, public education or anything else affecting you, your children, your clients or your community.

Through the Voices website, you can:

While you’re there, be sure to subscribe for Voices email updates so we can stay in touch on important issues and efforts. You can also follow Voices on Facebook.

Speak up! Join your voice with other Alaskans and let’s raise the volume on issues touching the lives of Alaska’s children, youth and families. Because even the littlest voices deserve to be heard.